Humira Shots, Haircuts, and Wedding Dresses, Oh My!

So, once again it’s been a long time since I’ve written! This year continues to be one wherein very little is “normal”, and in some ways not writing about it but just experiencing it has been the best way to process it. However, God always seems to bring me back to a place where I must recall that putting words to difficult things takes the power out of them… We name something, shed light on it, and invite Community into it, and suddenly the fear-swirl that comes with it must diminish. When I’m silent with something for too long, there is a temptation to see it as bigger than me, and what’s worse, that creeps into the feeling that it’s bigger than God, and the lie that we’re alone. I end up folding, thinking that speaking about things equates to whining, but that’s just a trick to make us feel judged, petty, small, and guilty, when Christ’s real perspective is one that caters to little children crawling up in His lap with little-children-worries.

The funny part is that these emotions seem to come out with the “wrong” triggers! Sickness itself was so bad. This last flare-up was so strong, so altogether crushing, that maybe there just wasn’t time to feel things as they happened, and now, months after the worst of it, the tiny things are the button-pushers.

This past week I had to cut my hair off. The rounds of powerful medicines we had to use for this flare-up made it rapidly fall out, and by the time this month came around it was clear that it wasn’t salvageable and that I was going to be a short-haired bride afterall. Not what I’d always dreamed of, but also NOT a huge deal; it’s definitely just hair! But somehow the no-choice-in-the-matterness of it all shook me up more than I expected, and on the happiest of girly days—when I got to go pick up my wedding dress and do the first fitting—I started to weep. Maybe these tangible things exist to put form to something we wouldn’t be able to process another way. Lost tresses and the way they change my face force me to move forward, to take a deep breath and chose bravery in the small stuff, leaving loss behind and pursuing confidence again after feeling tossed around by feisty circumstances.  

And I have been given the BEST support team for this stuff… two brothers and a sister that came along for the chop, and didn’t make me feel silly in any way, a mom that wiped my tears at the bridal salon, a pappy that nuzzled the words “you’re beautiful” into my cheek, and a fiancé that has only gushed delight, excitement, support, and anticipation at a lifetime of seeing each other grow and change.

A few days later, we needed to administer the second “loading dose” of the new “biologic” medication (given in my arm this time, instead of the initial 4 in my belly – see the pic!). This one is replacing the Remicade that was causing the hairloss, exhaustion, and brain-fog. We’re really hopeful that this is the one we can stick with for many years to come, and are praying that as it gets in my system, I will become able to wean off the steroids again and remain on only 1-2 medicines! It’s awesome to be able to give myself the shots (it’ll be 1 shot every 2 weeks now), and to no longer have to plan around intravenous infusions every 8 weeks! This medicine still suppresses my immune system, which potentially still limits where Johnny and I will be able to serve with Wycliffe in the future, but that “limit” no longer feels scary, and I stand firmly on the knowledge that no medicine will wrangle any limitation on God’s will.

So change pummels forward, but good things are afoot. Smiling today at the oddity of this summer, and thankful for all the ways this body is calming down. 

Mourning a path and gardening willingness

This is the week I was supposed to move to Papua New Guinea. ..Was supposed to get on a plane and leave everything behind but the relationships sending me, all my family and friends tethering me with love to this place. ..Was supposed to fly in multiple stages across datelines and timezones to a mountainous land throbbing from the ground with groans of longing for the Word in their languages...

I feel it pulse under my skin, everything put on hold, a twelve-year process prolonged into waiting once again.

And there is deep sadness in that, sorrow that some weakness in my physical body could explode into such severity now, and delay me from this work that I have felt my Lord tug at me about for more than half my years. Maybe it’s the steroids, but I find myself weeping often now, grasping to grieve for the scariness that November in the hospital was, for the confusion caused by getting so close to launching into Language Survey and then hearing God’s clear “No, still not yet.”

But that’s not quite it, maybe not quite true enough. I find myself grieving for the ifs. It’s too soon to know, but I find my soul reaching for answers about what things can be like once I’m in remission again——will it be possible to be a surveyor still, or will I need to do less physical roles in the Bible translation process? Will the Third World ever open up as an option again, or will these medicines (immuno-suppressants) be God’s tools of redirection, bringing me to work in a country I didn’t expect?  If it can no longer be Papua New Guinea, why did God spend all that time moving me in that direction, researching these people and their languages, investing in this Survey team, and creating a passion in me for the work He is doing there?——the questions can go on an on, but even they only scratch the surface, as it's more complicated than that. I can SEE God weaving together intricate stories that require more complexity, more ambiguity and waiting on Him than I'm comfortable with, but His results are always better than I can dream up, and the answers to those questions aren't the point..

Maybe more than this, then, I am grieving for how I can be so fully sold, so completely the property of my Jesus, and then still find willfulness in me that—in a tiny corner of my most honest and bare soul—hopes for my vision of things, my understanding, more than I fling myself at His feet to do whatever He pleases. Because He is most concerned with the conversation. There is no doubt that He will win. There is no doubt that all will hear, and He is mobilizing everyone who is willing to form the lines that will march forward with His healing, His breath, His salvation for every tribe and tongue. But more than just this end result, He uses every sorrow, every delay, every fog-enshrouded question mark, tear, and crumple to draw us and everyone around us into His lap, and to cultivate in us every good thing that cannot be there without whatever furnace He has brought us to. His sovereignty demands that I redefine everything—that if He allows it, that I should then call it Good, and open up my whole being to being drenched by that fire so we can continue on our way, refined and sharpened, and not consumed (Isaiah 43:2). He is fiercely committed to exacting every small rebirth of ferocious trust in us that will come from changing our plans, that will come from a million little deaths during our lifetimes, a million little lettings-go, even when He authored the direction of those plans in the first place (John 12:24). He loves me enough to forge an evermore iron-clad trust even when that process hurts.

So this week I grieve with my ribcage cracked open. I unlock that chamber so alter-flames can lick this heart with fiery tongues, can lap up disappointment and fear of loss, can dress every physical wound and every veins’ ache, can let in every EXTRAVAGANT joy that God has placed in my life in this season and every need that is before me right here, remembering that trusting Him is worth immeasurably more to Him than ministering for Him in any particular way. One will ALWAYS lead to the other (trust and love leading to ministry and worship), but He will zealously continue refining my trust until I am a closely-knit-to-Him shadow, turning on a dime, pouring Him out in the most unexpected ways and places, following His dancing Image more closely and with more abandon than I did before. Amen.

Repairing the ruin in the year of favor

I finally know “what this year is to be called”…
A beautiful friend of mine has been whispering for months, “ask God what this year is about for you… He will give you a word to focus it in, a name to call it. He wants to narrow in and teach you, show you something specific.”

Already, just the 2^nd month in, and this has been an incredible year of blessing, of vision being sharpened and light spilling all over it. I feel God undergirding it—undergirding me—with Isaiah 61, which my ESV titles “The Year of the Lord’s Favor”… and so it is.

I want to come in the next few days and fill you in on a whole bunch of monumental boulder-movings that have occurred in the last few weeks for me, but in case you read this blog and you aren’t at my church where this was already circulated, I wanted to post this initial update and then go from there:


Notes from a Glad Ledge

I can almost feel my toes curling tight over the edge of the precipice; a jumpy anticipation poised in my spirit’s heels, it’s tummy full of butterflies, and elation burst-fisting its way out of the fortress of waiting I’ve lived in for years… 

I wish I could show you the million little moments that have led to this cliff, but this is the story of some of them, so that you will understand the beauty behind it when you see me hurtle off its height—

Ten years ago I “accidentally” took a Linguistics class.
God had begun nipping and tugging at small fibers of my heart, telling me I wasn’t for this place and that he was fashioning my compassion and preparing it to pour out into other cultures all the days of the rest of my life. As I went through college I felt the conflict of “wisdom” to choose studies that would lead to a job, and a job that would be a livelihood, but as I kept trying to choose ways to do this, God would wreck my heart with images of orphans, cultures I’d learn of that were flanked by oppression, and blatant demonstrations of the fact that He’d wired me to find no joy in things but to hunger to reach into people’s stories and do life with them.

At the same time that He slowly revealed this burning call to missions, I stumbled into this most-odd class that had its students playing scrabble with the International Phonetic Alphabet and learning concepts about how languages all over the world work. Almost every student with me found it to be the most boring, absurd class they’d ever taken, but I was lit up and intrigued! Over the course of the next year, I began looking into ways to combine these passions, which eventually led me to Bible Translation… As I started to research how God could use something like linguistics on the mission field, I found out that there are still about 340 million people that have no portion of the Bible accessible to them in their mother tongue—that’s more than 2,000 possible languages left.

I found this utterly overwhelming.

I have since witnessed deep caverns of darkness in people’s lives, footholds, sorrows, staggering lack where God’s heart longs to fill in and heal—but to imagine these millions of people with no Living Word, with no access to the Words, Spirit, and Breath that swoop in to redeem all brokenness—this felt like too much. I knew that whatever manner of loneliness I have ever felt in this life, I have always had a book of shelter—Words that save me, have loved me, have torn me out of sorrow and into a Kingdom that seeks to rescue. But so many don’t have it. This knowledge licked at all the tugged fibers like whipping flames, and I felt God’s purpose in me solidify: you are to fight for Me this way.

So I set to it—I took a trip to Ghana in ’04 with Wycliffe Bible Translators, and spent a summer exploring how one approaches the idea of translating God’s Word and how many different roles there are in that process. I met the most incredible missionaries, witnessed moonlight literacy meetings in the mountain village of Gekrong, and watched God expand my heart and shatter my worldview. In the weeks that I spent observing the work and seeking God’s voice on these new hopes, Christ spoke such confirmation and assurance into my being that I came home fiercely excited. I thought that I would just quickly work off my undergrad school loans and then launch into the 1-2 years of Linguistic training I would need to be ready to head to the mission field—

Eight fascinating years have plodded past instead, though.
I look back on that time and the care God put into planting certainty into my heart and can’t help but laugh at how much He knew I’d need that! I tumbled into working several jobs, took certification classes and became a teacher, walked with my family through some heartbreaking crises, and wrestled through a long, sharp season of sickness. Journal after journal from the last few years were slowly filled with passionate out-cries, scribbled reminders of what God told me ‘on the mountain top’, and jotted down prophecies and prayers that I received from the Body and the people in my homegroups.

Each year I would ask and pray “is this the one?”, and always He would whisper that the Kingdom is here, and the Kingdom is coming—now/not yet, my love—You are already on the mission field, and every bit of now is the training. I, Myself, am cultivating in you what you will need for this task.

 As the years wore on, and especially inside the one of sickness, people began to suggest other goals, saying that I would need to stay where doctor’s were easily accessible, and that surely I would be happier accepting that circumstances were different now and that maybe I’d misunderstood God’s will. Medical bills were added onto the stack, and although the determined fire for what God had written on me wouldn’t wane, I shoved up my sleeves, understanding that it would be years more than the eight that have already passed before I would work the last of the debt down now.
Carefully, painstakingly, God ushered dependence into me, humility that has bent wide His vision for the impossible to be completed. Slowly I submitted my expectations and timeline and begged that God teach me to be where He has me well, and to trust that He would make it bullhorn-clear when it was time to move forward.

This past year, in August, the “Deeper into Community” series broke my heart again, and I found God stirring my waiting up with the “Your Calling Takes Us Deeper” sermon. In September, I sat in the sanctuary afterwards and shivered as I felt God whisper “it’s coming”, and then grabbed at my journal so I would keep that moment, writing it down as the physical goose-bumps dissolved back into normal skin.  In October God asked me to give up the sickened sorrow that I was carrying from my hope deferred, and November poked at my held-breath when we tumbled into speaking of Rescue each week and mingled our post-it notes together on the curved sanctuary wall—all our dreams stated beside one another, interconnected.

By the end of the year, I sent a long email to the Wycliffe recruiter that I’ve spoken with for years. I updated her on the debt again and explained that I was in another one of those weeks where my soul tingled and God was keeping me up at night with dreams—She sent a note back with a prayer and signed off with “LORD MOVE THE BLOCKADE”. Three days later I got a phone call.

One of my dearest friends was on the other end of the line saying, “Monica, are you sitting? We have something to tell you.”

And this brings me back to that cliff that I mentioned—

Through the obedience and sheer generosity of other believers, God is moving the blockade. With a single swipe—out of my hands, more than I could ask for, more than I can swallow without fits of joyful laughter—God has suddenly led a couple to completely wipe out the last of my school debt!
In quick gusts of the last month, so many miracle-nudges have been set in motion, and now it looks like I may be moving this summer to one of the three training-program locations to get equipped for this mission.

So I dance on this brink with you, beside you, sweetly terrified, our whole souls thrumming to the shift God’s calling our Body of believers to—church planting, adoption, foster care, feeding the poor—His fingers, His ears, His arms brought to His waiting people, and also His mouth in their language to feed their hearts. And as we all hurtle off these peaks, I hear Him comforting me… every one of these cliffs is in the vast Land called Married (Isaiah 62); none of you are hurtling alone, and whatever distance is coming, for a long or short time, you belong to one another—I am making you into each others’ netting.

The glistening new one

There was a day last year (early 2009) when I drove myself up to Berry for a visit. It was a glorious, sunny afternoon of traipsing all over campus… I chased deer, I careened down Stretch Road with abandon and elation in the crisp newly-spring weather, I stomped leaf-piles and inhaled Ford air, pool reflections, and picture-taking…
As the day wore on though, the clouds dripped down like watercolor gray running oddly over everything bright, and the sky began to tilt its melancholy chin. I was visiting with the new spring colts by this time, and suddenly heard sirens in the distance calling all of the wide expanse to attention. Ducks from around the pond had been scattering for a while, and I noticed that the last few photos I’d taken at the small waterfall had bleeding-droplet designs and an odd whirling effect to them..

By the time I’d run down the hill and back to my car, wild raindrops were the urgent metronome (metroGnome? :)), and I jumped into my front seat, retracing the miles of Stretch to their drumming.

I just made it off campus when the hail started.

First it was minute: small pin-pricks at the windshield as I giggled. Slowly it picked up speed and force: pebble-like wads flung like a bridge-troll’s trick.
I didn’t make it a whole two miles before the golf-ball sized ones came crashing down, and the giggles were completely gone by the time the pieces were as large as a small fist..
I remember finding a small Rome gas station, the only covering for miles, as the tears started down my cheeks. It was one of those small-town now-closed stations, so the old tanks stretched up into poles that only had a “roof” of about 4 feet across.. When I pulled in, I could see I was the third car trying to find succor in the thin covering.

I edged as close to the other cars as all of us could bear, and turned the Sentra off as it rocked under the weight of the blows. I had never sat with fear in the midst of nature, other than the time my college home was hit with lightning (this is a tale for another time though), but I couldn’t seem to help scrunching my eyes up each time that metallic crash would ripple through the frame of the car. I found myself balled up in the center of the car, envisioning the glass splaying sideways in jagged lines, and when I opened my eyes I saw a little girl in the car next to me, sitting in the very same position.. little arms wrapped around her knees that were pulled up to her chest, peering through her squinty eyes and jerking in little jumps each time the huge ice balls hit.

In a less dramatic way, this is what 2010 was like.

Like a sentence about sickness, punctuated with hopes holding their breath—cheeks full of air and lungs wondering when they’ll get some, dizzied by the lack.
Being sick again started in the fall of 2009… I got back from that most incredible semester of Linguistics classes and rolled right into my new assignment of teaching elementary school. But as a high school lit. teacher for going-on-four years, I s t r u g g l e d to figure out how to teach an all-in-one-classroom group of third, fourth, and fifth graders that desperately needed a literacy specialist. I was handed three stacks of books and told “you’ll do fine, they’re behind anyway”. And I tried, with every fiber in me, I stayed up nights and “did my homework”. I learned all the new terminology for third-grade math and studied-up on literacy strategies. I re-taught myself 5th grade social studies and lesson-planned for 7-preps daily, but within three weeks of the new school year I was very sick with an Ulcerative Colitis flare-up for the first time in years. Severe sickness, bleeding and weight-dropping, lasted the entire year, and for only the second or third time in my life I tasted the sad flavor of relinquishing something that feels like a failure even when you’ve given it your all.

Family was the best part of this year, and I was blessed with wave after crashing wave of support from my parents, sister, and brothers. They cut through the isolating nature of the ache of chronic illness, and loved on me.
But the year saw difficulties for them too, as my mother’s father became very ill and she left for Brazil (getting held there for a while because of issues with her papers!), and we had a few scares with her health too in these last few months.
I realized a few weeks ago that my emotions were brimming over with the most recent event: our church dealt with the weight of a young friend’s death. She was 28. We all gathered, some that we hadn’t seen in so long, to celebrate a life difficultly lived, boisterously hopeful and sorrowful at the same time, and it was utterly overwhelming.

Fist-like ice-balls on a windshield, ice in our stomachs and hope firmly in our cheeks, though our lungs felt deprived.

This long, meandery post is not about the details of sickness or sorrow however; nor the deeply beautiful lessons learned inside of God’s mercy-plan of suffering. It is instead about the second part of one of my favorite verses.
Proverbs 13:12 says, “Hope deferred makes the heart sick, but a longing fulfilled is a tree of life.”
And so hope is a heavy seed. Whatever aches and hiccups-of-path, whatever struggle and revelation, whatever necessary dependence, whatever loneliness and waiting, whatever fog-filled hunger for what you feel is coming but is not yet, it is all just inside the comma in that verse. The tree afterwards is already growing.

I bid 2010 Adieu with a strange mixture of feelings tonight, because so much has occurred—so much that hasn’t even been broached in these paragraphs. So much has been fashioned in me that I don’t even know how to explain yet, and so much rambunctious, stubborn good and needling bad has passed this way. But TRUST, the likes of which I hadn’t known before has lit up, and now comes a new year…

With love, fiery hope, pungent prayer, and a glad heart, I usher this one in quietly with you. And grin at the glistening new one~

Archives: Ghana News! - and the story of a miracle (Summer, 2004)

8 June 2004

Dear friends and family!
Standing in an airport in London waiting for the connection to Accra, Ghana :-)!...
These last few days before have been so quick and filled and so I find I can only do this now, but I was asked to post info on how to reach me, and here it is:

Discovery C/O GILLBT
Box OS-3063
Osu-Accra
GHANA W AFRICA

And Please email me at this account instead of my others while I am away: discovery_ghana@sil.org. You can also find updates on my group and progress as a whole on GoGhana.org!! for right now this is all i am able to type down; i go to meet up my group for the first time from here..
With profound love,
Monica
Posted on 8 June 2004 at 9:20 AM Comments (0)


12 April 2004
Good Lord!Dearhearts, I don't know if anyone checks this anymore, but it has long been on my heart to keep it up. It is nearly a year, and so much has been occurring.. I long to catch it up, but realistically, at least right now :), need to focus on graduating :), But this is my heart; I wanted to attach this letter, for right now, it is what is going on, what my heart has been preoccupied with, and what I long to share,.. Praise God, Mon " March 28, 2004 Dearest Family and Friends, Hello, hello! I am thinking of you all as I write this with a full heart about two things in my life right now that, though separate, God has intertwined and made important to one another, and I needed to first tell all of you, and then ask for accountability. You all are my family, and the ones that I thought would share in this joy with me... Many of you know that I have struggled during the last two years with an autoimmune disease called Ulcerative Colitis. The diagnosis in itself was a blessing, because at the time we just really needed to know what was wrong. The two years since were so much more than just this sickness, but it has saturated a lot of my thoughts and school-life. I worked to deal through the sickness itself and the emotional and physical stress that it brought. But since Christmas, it began to get worse and more constant. During these same two years, however, I (probably like every other 20-something)!, was trying to work out what to do “when I grow up”, what I love, and what I have been called to by God. I have felt a calling to over-seas missions for some time, and God began to direct my decisions, clarifying my desires and interests, and showing how He does take delight in our hearts and uses the silly things we enjoy to have meaning and effect in His Kingdom. The childish love of words and language and a fascination with culture that I have grown up with have brought me to love the idea of linguistics and has turned my heart to serve God with Bible Translation. As I began seeking this out, I was offered the opportunity to go to Ghana with “Discovery,” a short-term mission program of Wycliffe Bible Translators, in order to go see this work for myself and whether this is truly what God is moving me towards. Because of the state of my health and the worry that I hadn’t given up to God yet, I came near to not applying, but as the deadline drew near, I was drawn to ignore any limitations my body was causing. Within a week, I was accepted to the program, pending my health and the doctors’ permission, and we began to pray seriously for God to “do something with this body” that would keep my family and doctors from fearing it or it just not being possible for me to go right now. I had to have a medical procedure done last week that would allow the doctors to find out what was making me feel bad. As the week began, I started feeling noticeably different, but we just waited for the scheduled procedure. When the doctor came out after it, his face was beaming… They didn’t find anything. I mean that they didn’t find anything at all- All evidence of the Colitis is gone, there was only smooth, unharmed muscle tissue, and they said that my organs look like I’ve never had Colitis! Take a moment to really think about that.. :)! My Lord has given me a gift, and as much as our generation shies away from the language of miracles, God has flung off all obstacles from this desire to go, and has made me well, in direct correlation to our prayers for this missions trip. They won’t say that it is a cure, but that I am in official remission and that if it looks as good as it does now in 6 months when they test me again, that I will be able to get off the medicines that I have needed these two years. Needless then, (but so exciting!) to say: I am on my way to Ghana after graduation! My trip is scheduled for June 7th through July 31st, when I will meet up a small team of others that are interested in Linguistic missions and the support roles on the mission field. We will spend a week with one another between two of the cities in Ghana in orientation, and then will receive assignment-villages with a partner. We hope to spend several weeks within these villages working with the team of missionaries that are there now and experiencing translation, both with language projects that have been begun, and those languages that have not been written down yet (oh heart!) Before this trip can take place, I needed to gather you all and to ask for you to be my netting; first of all to celebrate with me!, but also to pray and to support me in this heart-journey. Please, pray specifically for how soon the trip is coming, for my continued health, and for the edification and preparation of the others that I am going with. I also ask you to pray for the financial needs of this trip and for the support I need to raise quickly. Please, consider sharing this with the body of believers that you meet with? This trip is still dependant on this, and because this whole story that I have told has occurred in the matter of two weeks, we will get to see my God touch hearts in little over a month and bring these things to pass. Monetarily, the cost of the trip is approximately $3700, which includes my room and board and getting there. I am expected to have half of the money by April 15 and the balance by May 25th. There are four weeks now until graduation, and a month later we set out!! Please, pray for both of these forms of support, and for the readiness of my heart- I can’t do this by myself- without your interest, prayers, shared joy, and support in raising the money to go serve. We aren’t afraid anymore, and I am overflowing, for what other response is there to God’s earthquakes? There is so much I want to tell you about this month and all that God has done!- the less reduced version for anyone that likes details :). Thank you, loved ones, for reading through this, for having been my support in the past, and for the love you have shown me,. I love you, and do look forward to hearing from you..
With celebration,
Monica
Posted on 12 April 2004 at 12:39 AM Comments (0)